{"id":3260,"date":"2021-09-15T11:42:20","date_gmt":"2021-09-15T15:42:20","guid":{"rendered":"https:\/\/childrenshealing.org\/beta\/?p=3260"},"modified":"2021-09-29T12:22:44","modified_gmt":"2021-09-29T16:22:44","slug":"the-brann-family","status":"publish","type":"post","link":"https:\/\/childrenshealing.org\/beta\/2021\/09\/15\/the-brann-family\/","title":{"rendered":"The Brann Family"},"content":{"rendered":"\t<div class=\"img has-hover x md-x lg-x y md-y lg-y\" id=\"image_1720819482\">\n\t\t\t\t\t\t\t\t<div class=\"img-inner image-cover dark\" style=\"padding-top:56.25%;\">\n\t\t\t<img loading=\"lazy\" decoding=\"async\" width=\"1020\" height=\"688\" src=\"https:\/\/childrenshealing.org\/beta\/wp-content\/uploads\/sites\/8\/2021\/09\/TJH0594-1024x691-1.jpg\" class=\"attachment-large size-large\" alt=\"\" srcset=\"https:\/\/childrenshealing.org\/beta\/wp-content\/uploads\/sites\/8\/2021\/09\/TJH0594-1024x691-1.jpg 1024w, https:\/\/childrenshealing.org\/beta\/wp-content\/uploads\/sites\/8\/2021\/09\/TJH0594-1024x691-1-593x400.jpg 593w, https:\/\/childrenshealing.org\/beta\/wp-content\/uploads\/sites\/8\/2021\/09\/TJH0594-1024x691-1-768x518.jpg 768w, https:\/\/childrenshealing.org\/beta\/wp-content\/uploads\/sites\/8\/2021\/09\/TJH0594-1024x691-1-510x344.jpg 510w\" sizes=\"auto, (max-width: 1020px) 100vw, 1020px\" \/>\t\t\t\t\t\t\n\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\n<style>\n#image_1720819482 {\n  width: 100%;\n}\n<\/style>\n\t<\/div>\n\t\n\t<div id=\"gap-698693482\" class=\"gap-element clearfix\" style=\"display:block; height:auto;\">\n\t\t\n<style>\n#gap-698693482 {\n  padding-top: 50px;\n}\n<\/style>\n\t<\/div>\n\t\n<p class=\"lead\">Jessica and Aaron \u201cA.J.\u201d Brann know what it is to suffer and grieve. But thanks in part to the Children\u2019s Healing Center, joy and hope for the future are also a part of their ongoing lives.<\/p>\n<p>Both are natives of Allegan County, and their journey together as husband and wife seemed normal enough at the outset. They were living in Holland, enjoying time as family with three young sons and one on the way.<\/p>\n<p>But nearly four years ago, they buried their oldest son Taylor when he was just 5, and at the same time, trying to manage a household that then included younger brothers Sebastian, 3, Edison, 1, and the expected arrival of Baxter, with whom Jessica was 36 weeks pregnant.<\/p>\n<p>\u201cIt was a lot to deal with,\u201d says Jessica, looking back on a bittersweet odyssey that continues to offer challenges, as two of their three surviving sons have the same disease that claimed their oldest brother.<\/p>\n<p>Taylor died of complications linked to FSGS, or, \u201cFocal Segmented Glomerulosclerosis,\u201d a rare and incurable disease that attacks the kidney\u2019s filtering units, causing serious scarring, and in the case of all three Brann youngsters, kidney failure.<\/p>\n<p>FSGS typically attacks adults 45 or older. While some cases are linked to genetics, the Branns are still searching for solid evidence as to why three of their boys have been affected.<\/p>\n<p>Taylor\u2019s symptoms were dismissed early on as an allergic reaction to dust linked to carpeting the Branns\u2019 landlord was removing from their dwelling. But when swelling to his face and neck persisted, the family sought more tests, and he was admitted to Helen DeVos Children\u2019s Hospital.<\/p>\n<p>Taylor was 4 at the time, and looking forward to preschool. Instead, he endured a steady diet of infusions, medications, chemotherapy, dialysis, and the installation of a tube that allowed nutrients to be delivered through his belly.<\/p>\n<p>As his condition worsened, he was put on the waiting list for a kidney transplant, and was pronounced a match with Jessica\u2019s brother. But in May 2013, he stopped breathing one night and couldn\u2019t be revived.<\/p>\n<p>Since then, Sebastian, 7, and Baxter, 3, have both been diagnosed with FSGS \u2013 Sebastian at the age of 5, and Baxter at about 18 months. Some 16 months ago, both boys received kidney transplants, within 10 days of one another. Baxter received his kidney from his father, and Sebastian from a deceased donor.<\/p>\n<p>Staying clear of germs that could affect their immune systems is paramount, so the family is well-versed in the ways of ultra-cleanliness. Disinfectant wipes are part and parcel of their lifestyle. Sebastian attends kindergarten, but neither he nor Baxter patronize many public places.<\/p>\n<p>\u201cGetting sick is really hard on them,\u201d says Jessica, \u201cand can not only affect their immune systems, but threaten rejection issues with their new kidneys.\u201d<\/p>\n<p>At school, Sebastian\u2019s teachers go above and beyond to maintain clean spaces. If a classmate becomes ill, Jessica and A.J. are among the first to know, so they can react as Sebastian\u2019s advocate. So far this school year, they\u2019ve been fortunate \u2013 Sebastian has only missed two days.<\/p>\n<p>Immediately after the boys\u2019 transplants, \u201cwe kept them in a bubble,\u201d says Jessica. And even upon learning about the Children\u2019s Healing Center from a social worker at DeVos Children\u2019s Hospital, they were initially reluctant to visit.<\/p>\n<p>Once there, though, \u201cWe were amazed at what they do for the families,\u201d says Jessica.<\/p>\n<blockquote><p>\u201cThey check for fevers, wipe down the bottoms of shoes, and it\u2019s incredible the deep-cleaning they do every day.\u201d<\/p><\/blockquote>\n<p>The boys took to the Center with gusto. \u201cSebastian really enjoys playing with all the balls in the gym area, and the last time we were there, all three boys loved playing with the big, blue blocks.\u201d<\/p>\n<p>The family first visited about a year ago, and have made the trip from their Holland home nearly a half-dozen times since, sometimes piggybacking a trip to the Center with morning lab tests the boys must submit to monthly at DeVos.<\/p>\n<p>Jessica belongs to a pair of online support groups addressing kidney disease, and has shared news of the Center with their members. \u201cThere\u2019s even interest from parents in the Detroit area,\u201d she says, \u201cbecause they believe it\u2019s worth the drive to play in that kind of environment.\u201d<\/p>\n<p>\u201cIt\u2019s a great place to play as a family,\u201d says Jessica, \u201cand also somewhere that we can drop them off and then get some shopping done or even do a date night.<\/p>\n<blockquote><p>\u201cIn either case, what\u2019s really wonderful is that we\u2019re taking them so they can just have some fun.\u201d<\/p><\/blockquote>\n\t<div id=\"gap-1384575716\" class=\"gap-element clearfix\" style=\"display:block; height:auto;\">\n\t\t\n<style>\n#gap-1384575716 {\n  padding-top: 50px;\n}\n<\/style>\n\t<\/div>\n\t\n\n  \n    <div class=\"row large-columns-3 medium-columns- small-columns-2 row-small slider row-slider slider-nav-reveal\"  data-flickity-options='{&quot;imagesLoaded&quot;: true, &quot;groupCells&quot;: &quot;100%&quot;, &quot;dragThreshold&quot; : 5, 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href=\"https:\/\/childrenshealing.org\/beta\/wp-content\/uploads\/sites\/8\/2021\/09\/TJ25762-1194x800.jpg\" title=\"\">            <div class=\"box has-hover gallery-box box-overlay dark\">\n              <div class=\"box-image image-cover\" style=\"padding-top:100%;\">\n                <img loading=\"lazy\" decoding=\"async\" width=\"597\" height=\"400\" src=\"https:\/\/childrenshealing.org\/beta\/wp-content\/uploads\/sites\/8\/2021\/09\/TJ25762-597x400.jpg\" class=\"attachment-medium size-medium\" alt=\"\" ids=\"3279,3278,3276,3277,3275,3274,3273,3272,3271,3270,3269,3268,3267,3266,3265,3264,3263\" type=\"slider\" col_spacing=\"small\" columns=\"3\" slider_bullets=\"true\" image_height=\"100%\" srcset=\"https:\/\/childrenshealing.org\/beta\/wp-content\/uploads\/sites\/8\/2021\/09\/TJ25762-597x400.jpg 597w, https:\/\/childrenshealing.org\/beta\/wp-content\/uploads\/sites\/8\/2021\/09\/TJ25762-1194x800.jpg 1194w, 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href=\"https:\/\/childrenshealing.org\/beta\/wp-content\/uploads\/sites\/8\/2021\/09\/TJ25724-972x800.jpg\" title=\"\">            <div class=\"box has-hover gallery-box box-overlay dark\">\n              <div class=\"box-image image-cover\" style=\"padding-top:100%;\">\n                <img loading=\"lazy\" decoding=\"async\" width=\"486\" height=\"400\" src=\"https:\/\/childrenshealing.org\/beta\/wp-content\/uploads\/sites\/8\/2021\/09\/TJ25724-486x400.jpg\" class=\"attachment-medium size-medium\" alt=\"\" ids=\"3279,3278,3276,3277,3275,3274,3273,3272,3271,3270,3269,3268,3267,3266,3265,3264,3263\" type=\"slider\" col_spacing=\"small\" columns=\"3\" slider_bullets=\"true\" image_height=\"100%\" srcset=\"https:\/\/childrenshealing.org\/beta\/wp-content\/uploads\/sites\/8\/2021\/09\/TJ25724-486x400.jpg 486w, https:\/\/childrenshealing.org\/beta\/wp-content\/uploads\/sites\/8\/2021\/09\/TJ25724-972x800.jpg 972w, 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grieve. But thanks in part to the Children\u2019s Healing Center, joy and hope for the future are also a part of their ongoing lives. Both are natives of Allegan County, and their journey together as husband and wife seemed normal enough at the [&#8230;]\n","protected":false},"author":2,"featured_media":3268,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"video","meta":{"_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"footnotes":""},"categories":[73,74,76],"tags":[],"class_list":["post-3260","post","type-post","status-publish","format-video","has-post-thumbnail","hentry","category-member-stories","category-family-features","category-video-library","post_format-post-format-video"],"aioseo_notices":[],"_links":{"self":[{"href":"https:\/\/childrenshealing.org\/beta\/wp-json\/wp\/v2\/posts\/3260","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/childrenshealing.org\/beta\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/childrenshealing.org\/beta\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/childrenshealing.org\/beta\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/childrenshealing.org\/beta\/wp-json\/wp\/v2\/comments?post=3260"}],"version-history":[{"count":4,"href":"https:\/\/childrenshealing.org\/beta\/wp-json\/wp\/v2\/posts\/3260\/revisions"}],"predecessor-version":[{"id":3281,"href":"https:\/\/childrenshealing.org\/beta\/wp-json\/wp\/v2\/posts\/3260\/revisions\/3281"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/childrenshealing.org\/beta\/wp-json\/wp\/v2\/media\/3268"}],"wp:attachment":[{"href":"https:\/\/childrenshealing.org\/beta\/wp-json\/wp\/v2\/media?parent=3260"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/childrenshealing.org\/beta\/wp-json\/wp\/v2\/categories?post=3260"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/childrenshealing.org\/beta\/wp-json\/wp\/v2\/tags?post=3260"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}